Receiving a cerebral palsy diagnosis can be one of the hardest things to hear. Cerebral palsy is a movement disorder that happens when a child’s brain suffers an injury at or close to birth. While growing up, children with cerebral palsy won’t hit milestones as early as other children. They may have low Apgar scores. This test checks a newborn’s appearance, heart rate, reflexes, muscle tone, and breathing rate. Or they may not be able to roll over or look like they are having a seizure.
Watching your child experience those symptoms can be very distressing for parents. Therefore, a cerebral palsy diagnosis can bring forth a sense of relief. This is true even if that relief is full of concern for your child’s future. Here’s what all parents should know if their child after their doctor has given them a diagnosis of cerebral palsy.
Cerebral palsy is not a disease, it is a neurological syndrome with several signs and symptoms. These symptoms are like several other metabolic/neurodegenerative disorders. Because of this, it is important to have the child evaluated. Specialists do this in order to determine if there any underlying conditions responsible for the cerebral palsy.
1. A Cerebral Palsy Diagnosis Is Not Your Fault
Many parents blame themselves when their child receives a cerebral palsy diagnosis. But it is not your fault. Yes, cerebral palsy can is frequently a preventable condition. But it’s a preventable condition on the part of the medical staff, not the parents. Among the many improper steps the hospital staff can take are:
- Not monitoring the baby’s heartbeat to detect unacceptable levels of stress.
- Not performing an emergency Caesarian section when it is clearly necessary.
- Improper use of the birthing tools used during a forceps delivery or vacuum extraction.
- Not taking the necessary steps to prevent or control hemorrhaging and tearing in the mother.
- Using too much force to twist or pull the baby during the delivery process.
The risks to both mother and child continue after the birth of your child. These risks include:
- Not controlling blood loss.
- Not monitoring the baby’s oxygen levels.
- Failing to check the baby for jaundice.
- Failing to check the mother’s Rh blood type.
- Not diagnosing and treating any uterine ruptures or tears immediately to prevent infection and other long-term medical problems.
All these issues can result in significant problems for both baby and mother. Be sure you stay on top of everything the doctors, nurses, and any other medical staff is doing. This is the only way to make sure both mother and child have the best shot at avoiding complications.
Parents should be mainly prepared for the most common symptom—spasticity. Spasticity means that some of their muscles contract continuously, which makes their movements very stiff and it can be painful. However, it is possible to manage this stiffness.
Worth noting is that despite there being 3 types of cerebral palsy, the most common one is spasticity. How much of a problem spasticity becomes depends on the amount of the child’s brain has been affected. It also depends on which part of the body that section of their brain controls.
There are many forms of therapy that you can use early on to help loosen your child’s muscles and alleviate their discomfort.
3. Other Conditions Co-Occur With Cerebral Palsy
Furthermore, cerebral palsy is a mobility disorder. Because your child might walk a bit different than other children or need a wheelchair, it can lower their confidence. It can also affect their self-esteem and independence. So, while you are focusing on managing their difficulties moving, be mindful of the emotional effect their disorder can have on them.
The signs and symptoms of cerebral palsy can differ from person to person, This can lead to a misdiagnosis. Which is why it’s essential for you to get a second opinion for your child’s diagnosis.
One reason why misdiagnosis of cerebral palsy is possible has something else to do with a child’s spastic and uncontrollable motions. These movements, which happen to children with cerebral palsy, can look a lot like a seizure.
It’s difficult for health care providers to determine whether it was a seizure or a movement disorder. This is because preverbal or nonverbal children can’t explain to anyone what they are experiencing when these moments happen. This can cause them to give your child a seizure disorder diagnosis.
Another possible disorder that is easy to confuse with cerebral palsy is dopa-responsive dystonia (DRD). The symptoms of DRD are very similar to those of dystonic cerebral palsy. However, the symptoms of DRD will get worse over time because it is a progressive disease. But, once a child with DRD receives dopamine therapy, their symptoms may go away completely.
Along the same lines, there are several other neurodegenerative, including genetic and metabolic disorders, that present similar signs and symptoms. The of the progression of some of these disorders is slow. Because of this, it is possible for them to misdiagnosed as cerebral palsy.
5. There is Hope
While there is no cure for cerebral palsy, the condition is manageable and there is hope. Depending on your child’s specific situation they may work with many different specialists:
- Pediatric neurologist
- Orthopedic surgeon
- Physical therapist
- Occupational therapist
- Speech-language pathologist
- Developmental therapist
- Mental health specialist
- Recreation therapist
- Social worker
- Special education teacher
Your child’s specialist will recommend various treatments and therapies. There are other activities you and your child can do to help them manage their symptoms and improve their mobility. These include activities such as horseback riding, art therapy, and yoga. Special Strong offers personal training that can help with a Cerebral Palsy Diagnosis.
Navigating Life After a Cerebral Palsy Diagnosis: A Guide to What’s Next
Receiving a diagnosis of cerebral palsy (CP) for yourself or a loved one can be an emotionally challenging experience. However, understanding what comes next is crucial for providing the best possible support and care. Here’s a guide to help you navigate the journey after a cerebral palsy diagnosis:
1. Seek Expert Guidance: After a diagnosis, it’s essential to consult with healthcare professionals specializing in cerebral palsy. This may include pediatricians, neurologists, physical therapists, and occupational therapists. They can provide valuable insights, answer questions, and guide you on the best course of action.
2. Develop a Care Plan: Collaborate with healthcare professionals to create a comprehensive care plan tailored to the individual’s needs. This plan may encompass medical treatments, therapies, and interventions aimed at enhancing the individual’s quality of life.
3. Access Early Intervention Services: Additionally, for children diagnosed with cerebral palsy, early intervention services are crucial. Furthermore, these services, which may include physical therapy, occupational therapy, and speech therapy, aim to address developmental challenges and maximize the child’s potential.
4. Explore Educational Resources: If the individual with cerebral palsy is of school age, familiarize yourself with the available educational resources. Discuss potential accommodations and support services with school staff to ensure the child’s educational needs are met.
5. Connect with Support Networks: Seek out support networks and organizations specializing in cerebral palsy. These communities can provide valuable emotional support, share experiences, and offer practical advice on navigating life with CP.
Remember, a cerebral palsy diagnosis is the beginning of a unique journey. With the right support, care, and advocacy, individuals with cerebral palsy can lead fulfilling lives, reaching their full potential.